EDS, etc.

    Curated Resources

    A carefully curated collection of books, organizations, experts, and tools to support your health journey and chronic illness management.

    Books & Reading

    Curated collection of books on health, wellness, and chronic illness management

    Cover of The Oxygen Advantage

    The Oxygen Advantage

    By Patrick McKeown. A groundbreaking book on breathing techniques for improved health, fitness, and performance.

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    Cover of The Breathing Cure

    The Breathing Cure

    By Patrick McKeown. Comprehensive guide to using breathing techniques for better health and healing. *Note: My story is included in this book!

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    Cover of Breathe

    Breathe

    By James Nestor. An exploration of the lost art of breathing and how proper breathing can transform your health.

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    Cover of Stress Less, Accomplish More

    Stress Less, Accomplish More

    By Emily Fletcher. A practical guide to meditation and stress management for busy people.

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    Cover of In the Flo

    In the Flo

    By Alisa Vitti. A comprehensive guide to understanding and optimizing your menstrual cycle for better health and productivity.

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    Cover of The Body Keeps The Score

    The Body Keeps The Score

    By Bessel Van Der Kolk, MD. A groundbreaking exploration of how trauma affects the body and mind, and pathways to recovery.

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    Cover of Accessing the Healing Power of the Vagus Nerve

    Accessing the Healing Power of the Vagus Nerve

    By Stanley Rosenberg. A practical guide to understanding and activating the vagus nerve for improved health and well-being.

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    Cover of Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

    Disjointed: Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

    A comprehensive guide to understanding, diagnosing, and managing EDS and hypermobility disorders.

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    Cover of The Lady's Handbook for Her Mysterious Illness

    The Lady's Handbook for Her Mysterious Illness

    By Sarah Ramey. A powerful memoir and guide for women navigating mysterious chronic illnesses and the medical system.

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    Cover of Anatomy of Breathing

    Anatomy of Breathing

    By Blandine Calais-Germain. A detailed anatomical guide to understanding breathing mechanics and improving respiratory function.

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    Cover of Integrative Neurology

    Integrative Neurology

    Edited by John McBurney and Dr. Ilene Ruhoy. A comprehensive approach to neurological health combining conventional and integrative medicine.

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    Cover of Atomic Habits

    Atomic Habits

    By James Clear. A practical guide to building good habits and breaking bad ones through small, incremental changes.

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    Cover of Ask For More

    Ask For More

    By Alexandra Carter. A guide to negotiation and asking for what you want in all areas of life, including healthcare advocacy.

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    Cover of The Attributes

    The Attributes

    By Rich Diviney. Insights into the mental and physical attributes that drive peak performance and resilience.

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    Cover of Mindset

    Mindset

    By Carol S. Dweck, PhD. The groundbreaking work on the power of believing you can improve and the psychology of success.

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    Cover of Why Do I Hurt?

    Why Do I Hurt?

    By Adriaan Louw, PT, PhD. A guide to understanding and managing chronic pain through education and movement.

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    Cover of Eat For Energy

    Eat For Energy

    By Ari Whitten. A science-based approach to nutrition for optimal energy and mitochondrial health.

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    Cover of How to Feed a Brain

    How to Feed a Brain

    By Cavin Balaster. A comprehensive guide to nutrition for optimal brain health and cognitive function.

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    Cover of Boost Your Brain

    Boost Your Brain

    By Dr. Majid Fotuhi. Evidence-based strategies for improving memory, focus, and overall brain performance.

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    Cover of Concussion Repair Manual

    Concussion Repair Manual

    By Dr. Dan Engle. A comprehensive guide to healing from concussion and traumatic brain injury using integrative approaches.

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    Cover of The Book of Lymph

    The Book of Lymph

    By Lisa Leavitt Gainsley, CLT. A comprehensive guide to understanding and supporting your lymphatic system for better health.

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    Cover of Living Life to the Fullest with Ehlers-Danlos Syndrome

    Living Life to the Fullest with Ehlers-Danlos Syndrome

    By Kevin Muldowney, PT and Kathleen Muldowney, PT. Practical strategies for managing EDS and maintaining an active, fulfilling life.

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    Cover of The Sbtle Art of Not Giving A Fck

    The Sbtle Art of Not Giving A Fck

    By Mark Manson. A counterintuitive approach to living a good life by focusing on what truly matters.

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    Cover of Brain Save

    Brain Save

    By Dr. Tits Chu. A guide to protecting and optimizing brain health through lifestyle and medical interventions.

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    Cover of Peak Performance: Elevate Your Game, Avoid Burnout, and Thrive with the New Science of Success

    Peak Performance: Elevate Your Game, Avoid Burnout, and Thrive with the New Science of Success

    By Brad Stulberg and Steve Magness. A guide to achieving peak performance while maintaining balance and avoiding burnout through evidence-based strategies.

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    Patient Organizations

    Non-profit organizations providing support, education, and advocacy for chronic illness communities

    The Ehlers-Danlos Society

    Global organization providing education, support, and research funding for EDS.

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    Dysautonomia International

    Non-profit focused on POTS and other forms of dysautonomia research and advocacy.

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    The Dysautonomia Project

    Patient-led organization dedicated to providing education and support for dysautonomia patients and their families.

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    Standing Up to POTS

    Non-profit organization focused on supporting POTS patients through education, advocacy, and community building.

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    DINET

    Online community and support network for people with dysautonomia conditions.

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    TMS for a Cure

    Organization focused on advancing TMS (Transcranial Magnetic Stimulation) treatments for various conditions. *Note: I serve on the Board of Directors for this organization.

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    Concussion Compass

    Resource platform providing guidance and support for concussion and brain injury recovery.

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    LoveYourBrain

    Community-based organization supporting people affected by traumatic brain injury through yoga, meditation, and community programs.

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    Financial & Insurance Resources

    Tools and guides for navigating healthcare costs and insurance systems

    RIP Medical Debt

    Non-profit organization that abolishes medical debt for individuals and families, providing financial relief from healthcare costs.

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    I AM THE BOTTOM LINE.

    Comprehensive strategies for successfully navigating insurance claims, medical billing disputes, and financial advocacy from someone who's mastered the system. *Note: I am the creator of this resource.

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    Podcasts

    Featured podcast shows for health education and chronic illness support

    Huberman Lab Podcast

    Science-based tools for everyday life hosted by Dr. Andrew Huberman, covering neuroscience, health, and performance optimization.

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    Bendy Bodies Podcast

    A podcast dedicated to Ehlers-Danlos Syndrome and hypermobility spectrum disorders, featuring expert interviews and patient stories.

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    Smart People to Follow

    Health experts and thought leaders to find on podcasts and social media

    Dr. Aly Cohen

    Environmental medicine physician exploring toxins and environmental health factors. Find her on environmental health and wellness podcasts.

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    Dr. Andy Galpin

    Exercise physiologist and researcher specializing in human performance, strength training, and endurance. Expert in muscle physiology and sports science.

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    Dr. Anne Maitland

    MCAS specialist and expert in mast cell disorders and connective tissue conditions. Look for her on autoimmune and MCAS-focused podcasts.

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    Dr. Eric Cobb

    Z-Health founder specializing in neuroplasticity and movement optimization. My life-changing neuro performance trainer, Steve Madama, trained with Z-Health.

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    Dr. Lorimer Moseley

    Pain science researcher explaining the neuroscience of pain and recovery. Look for him on pain science and neuroscience podcasts.

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    Dr. Robynne Chutkan

    Gut health expert specializing in microbiome diversity and digestive wellness. Find her on health and nutrition podcasts.

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    Dr. Sarah Cohen Solomon

    My twin sister! Pediatrician who treats patients with EDS and its co-morbidities, and also lives with these conditions.

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    Dr. Will Bulsiewicz

    Gastroenterologist and gut health expert focusing on microbiome optimization. Search for 'Dr. B' on nutrition and gut health podcasts.

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    James Nestor

    Author and journalist investigating the transformative power of proper breathing techniques. Find him on health and wellness podcasts.

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    Mike Golden

    Z-Health master instructor focusing on movement patterns and pain science. Find him on movement and rehabilitation podcasts.

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    Natasha Wilch

    Concussion rehabilitation specialist focusing on brain injury recovery strategies. Find her on concussion and brain health podcasts.

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    Patrick McKeown

    Breathing expert and author exploring optimal breathing for health and performance. Search for him on health and performance podcasts.

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