Be the CEO of Your Life
A holistic guide to thriving in spite of your challenges
No one was born knowing the tools that would be necessary for building a happy and healthy life. Many people never even think about such things - or at least not until later in life. But for those of us with complex and chronic conditions, such as Ehlers-Danlos Syndrome, POTS, MCAS, ME/CEFS, and Gastroparesis, developing the “right” set of tools can mean the difference between being active or housebound, living independently or requiring constant assistance, eating food or being fed by a tube, living or just surviving.
Science and medicine haven’t caught up to our needs - although to be honest, science is far ahead of medicine (we’ll need to fix that!). Patients are often left on our own to figure out how to manage our conditions, and to share our knowledge with each other.
In spite of having access to some of the “top experts,” my best and most life-changing tools and resources are things I had to research and chase after on my own.
I’ve taken back the control over my body and life that I lost in the earlier years of my search for answers, and I’m sharing with YOU how you can take back control, too,
. . . because we all deserve to LIVE, not just survive.
